Search

Community comes together to support Swaffham teenager who has a genetic condition that has left her having to be fed through her heart

PUBLISHED: 12:37 15 August 2017 | UPDATED: 15:36 15 August 2017

The Swaffham Lions held a raffle draw to help Sophie Burke to raise enough money to see a specialist consultant. Picture left to right is Jo Burke, Sophie Burke and Lion President Pam Tallon. Picture: Swaffham Lions

The Swaffham Lions held a raffle draw to help Sophie Burke to raise enough money to see a specialist consultant. Picture left to right is Jo Burke, Sophie Burke and Lion President Pam Tallon. Picture: Swaffham Lions

Archant

A community is rallying to help a teenager born with a rare condition who has to risk her life every day just to eat.

The Swaffham Lions held a raffle draw to help Sophie Burke to raise enough money to see a specialist consultant. Picture: Swaffham Lions The Swaffham Lions held a raffle draw to help Sophie Burke to raise enough money to see a specialist consultant. Picture: Swaffham Lions

We have reported how Sophie Burke, 18, from Swaffham, has a condition called Ehlers Danlos Syndrome which has impacted nearly all aspects of her life and most recently left her having to consume food through her heart via a life-threatening procedure.

She has been told that her situation could be permanent but she is not giving up and her family is determined to raise enough money to see a specialist consultant and potentially get treatment abroad.

On Saturday, August 14, Swaffham and District Lions held a raffle draw and garden party for Sophie and announced they had raised around £700.

The extra money means that Sophie’s fund has now reached over £2,000.

Sophie Burke, 18, of Swaffham, who has a rare condition and her family hope to fundraise to get her treatment abroad. Picture: DENISE BRADLEY Sophie Burke, 18, of Swaffham, who has a rare condition and her family hope to fundraise to get her treatment abroad. Picture: DENISE BRADLEY

Dennis Tallon of the Swaffham Lions said: “The raffle went very well, it started at Swaffham Tesco store and this raised the bulk of the money.

“Then it was taken to a few fetes and social media helped with the Lions Facebook page promoting the cause.”

The Lions are not the only ones who have come forward to help Sophie. Another charity night is set to take place in October thanks to Kim Long from Innovations Hair and Beauty.

Ms Long’s charity evening will take place at Stanley’s social club in Swaffham and when she told the venue and the entertainers about Sophie they all offered their services free of charge.

“Her story got to all of us and as I’ve done charity fundraisers before I decided to try to help,” she said.

“I have two daughters myself and this really tugged the heart strings, when I asked about using Stanley’s, owner Trudy Cutting immediately offered it for free and then the entertainers offered their services for free too. It was amazing.”

She added: “Sophie needs everyone’s support and I hope we can all join together to help her.”

While there is no cure for Sophie’s condition the teenager hopes that she will eventually be able to eat food again. Speaking of her future, her mum, Jo Burke, said: “I hope there is someone out there who knows what could help. We believe there are treatments out there and even if it is not in this country there could be options we could try in order to get her a more normal life.”

MORE: Mother speaks of her determination to save teenage daughter who has to be fed through her heart

Other news

Yesterday, 14:26

A parish council in Norfolk is hoping to pay tribute to those who served in the First World War with a new memorial shelter.

Yesterday, 12:59

Center Parcs has pulled its advertising with the Daily Mail after a promotion appeared alongside a column criticising the diver Tom Daley and his husband Dustin Lance Black, who are expecting a child.

Yesterday, 12:47

Norfolk County Council are urging drivers to take extra care on the roads tonight.

Yesterday, 12:04

Serious flooding like the 2013 storm surge which devastated Norfolk’s coastline are set to become more frequent, scientists warn.

Most Read

Yesterday, 14:26

A parish council in Norfolk is hoping to pay tribute to those who served in the First World War with a new memorial shelter.

Read more
Yesterday, 06:00

Here is a collection of some of your finest photographs from some of Norfolk’s best-loved towns and villages.

Read more
Fakenham
Thu, 19:22

Tesco has launched an investigation into the conduct of two members of staff after a video of them engaging in a sex act in a Norfolk store went viral.

Read more
Tesco
Yesterday, 09:40

The clocks traditionally go forward an hour at 1am on the last Sunday in March.

Read more
Friday, February 9, 2018

One of Fakenham’s best known companies has agreed to sponsor a GoGoHare as part of a county-wide sculpture trail.

Read more

Local Weather

Partly Cloudy

Partly Cloudy

max temp: 8°C

min temp: 6°C

Show Job Lists

Digital Edition

Image
Read the Fakenham and Wells Times e-edition today
E-edition

Newsletter Sign Up

Sign up to receive our regular email newsletter