Search

Parents of seriously-ill Shipdham baby Henry Vinen thank vital community support

PUBLISHED: 15:30 12 July 2017 | UPDATED: 15:30 12 July 2017

Henry Vinen, pictured when he was 11-weeks-old, who has been diagnosed with severe combined immunodeficiency, with his mum and dad, Maria and Stuart, and brother, Oscar, at their home at Shipdham. Picture: DENISE BRADLEY

Henry Vinen, pictured when he was 11-weeks-old, who has been diagnosed with severe combined immunodeficiency, with his mum and dad, Maria and Stuart, and brother, Oscar, at their home at Shipdham. Picture: DENISE BRADLEY

Archant

The parents of a seriously-ill baby who is fighting for his life have thanked the ongoing support from the Norfolk community.

Four-month-old Henry Vinen, from Shipdham near Dereham, was born seemingly fit and healthy.

But after several weeks of infections his parents Maria and Stuart were told the devastating news their newborn was battling against the rare and potentially fatal condition Severe Combined Immunodeficiency.

The illness means his body cannot fight the simplest of infections because of a faulty immune system.

Henry has spent the last five weeks at Great Ormond Street Hospital (GOSH) and the last week in the hospital’s intensive care unit because he is struggling to breath.

In order to reach his first birthday, he needs a bone marrow transplant and his parents set up a Crowdfunding page to raise £30,000 to fund his 24-hour care before the transplant.

MORE: Crowdfunding launched for baby who could die from the simplest infection

It has so far raised nearly £6,500 and has paid for practical items including clothes, bedding and bottles, which need to be constantly replaced because of Henry’s lack of immune system.

Mrs Vinen, 30, who has been based at GOSH for several weeks with her husband and eldest son Oscar, said: “We live in 24 hour blocks. We are thankful for the support from others. It has been astounding. Even people who don’t know us have been messaging us. That goes a long way. We feel we are not alone.”

Oscar, who is nearly two-years-old, was discovered to be a bone marrow match and an emergency transplant was done at the beginning of July to boost Henry’s health.

The family has to wait 100 days to find out if a full bone marrow transplant can be done using Oscar’s bone marrow.

Mrs Vinen added: “100 days doesn’t sound a lot but it feels like a long time. There are no words to explain how awful things are.”

Henry is currently conscious but to help his breathing he could potentially receive a drug being trialled in America to treat the Ebola virus.

On September 17 a sponsored 10K run is taking place in Shipdham to raise money for the Crowdfunding page.

Visit www.justgiving.com/crowdfunding/Henrysjourney and search Team Henry Sponsored Run Weekend on Facebook.

Other news

49 minutes ago

Dereham is situated right in the heart of Norfolk, and it is Breckland District’s second largest town with its origins dating back to the Saxon era.

15:06

Public outcry over plans to sell a popular car park has convinced at least one councillor that the proposal may be misguided.

The region’s mental health trust has appointed an interim director of nursing, quality and patient safety.

An NHS Action group will visit Dereham ahead of plans to sell off nearly six acres of land at the town’s hospital.

Most Read

15:06

Public outcry over plans to sell a popular car park has convinced at least one councillor that the proposal may be misguided.

Read more
Judy Oliver
Yesterday, 18:12

A mid-Norfolk care home has announced its closure ahead of the publication of a damning report into its failing standards of care.

Read more
Care Quality Commission
09:06

A charity near Fakenham has been left stunned by the success of their fund raising campaign, which aims to raise enough money to allow them to significantly expand their premises.

Read more
Hawk and Owl Trust
Wed, 15:47

Plans to close a busy road in Fakenham in the middle of December have been met with fury from local business owners, with one calling it “disastrous”.

Read more
George Acheson
Yesterday, 15:30

Vandals have caused criminal damage to the headquarters of Fakenham’s Air Cadets, leaving the main door of the building covered in paint and glue, and obstructed by litter and bags of charcoal.

Read more

Local Weather

Overcast

Overcast

max temp: 15°C

min temp: 11°C

Show Job Lists

Digital Edition

Image
Read the Fakenham and Wells Times e-edition today E-edition

Newsletter Sign Up

Sign up to receive our regular email newsletter