Search

Parents of seriously-ill Shipdham baby Henry Vinen thank vital community support

PUBLISHED: 15:30 12 July 2017 | UPDATED: 15:30 12 July 2017

Henry Vinen, pictured when he was 11-weeks-old, who has been diagnosed with severe combined immunodeficiency, with his mum and dad, Maria and Stuart, and brother, Oscar, at their home at Shipdham. Picture: DENISE BRADLEY

Henry Vinen, pictured when he was 11-weeks-old, who has been diagnosed with severe combined immunodeficiency, with his mum and dad, Maria and Stuart, and brother, Oscar, at their home at Shipdham. Picture: DENISE BRADLEY

Archant

The parents of a seriously-ill baby who is fighting for his life have thanked the ongoing support from the Norfolk community.

Four-month-old Henry Vinen, from Shipdham near Dereham, was born seemingly fit and healthy.

But after several weeks of infections his parents Maria and Stuart were told the devastating news their newborn was battling against the rare and potentially fatal condition Severe Combined Immunodeficiency.

The illness means his body cannot fight the simplest of infections because of a faulty immune system.

Henry has spent the last five weeks at Great Ormond Street Hospital (GOSH) and the last week in the hospital’s intensive care unit because he is struggling to breath.

In order to reach his first birthday, he needs a bone marrow transplant and his parents set up a Crowdfunding page to raise £30,000 to fund his 24-hour care before the transplant.

MORE: Crowdfunding launched for baby who could die from the simplest infection

It has so far raised nearly £6,500 and has paid for practical items including clothes, bedding and bottles, which need to be constantly replaced because of Henry’s lack of immune system.

Mrs Vinen, 30, who has been based at GOSH for several weeks with her husband and eldest son Oscar, said: “We live in 24 hour blocks. We are thankful for the support from others. It has been astounding. Even people who don’t know us have been messaging us. That goes a long way. We feel we are not alone.”

Oscar, who is nearly two-years-old, was discovered to be a bone marrow match and an emergency transplant was done at the beginning of July to boost Henry’s health.

The family has to wait 100 days to find out if a full bone marrow transplant can be done using Oscar’s bone marrow.

Mrs Vinen added: “100 days doesn’t sound a lot but it feels like a long time. There are no words to explain how awful things are.”

Henry is currently conscious but to help his breathing he could potentially receive a drug being trialled in America to treat the Ebola virus.

On September 17 a sponsored 10K run is taking place in Shipdham to raise money for the Crowdfunding page.

Visit www.justgiving.com/crowdfunding/Henrysjourney and search Team Henry Sponsored Run Weekend on Facebook.

Other news

06:00

The mother of an RAF soldier who died in a motorcycle is taking on an unusual fundraising activity to raise money for the air cadets, an organisation she says helped to shape her son’s career.

Yesterday, 18:00

The results of a survey distributed across a Norfolk seaside town show that residents oppose plans to redevelop a lifeboat memorial site, however the district council says they will continue to explore the idea.

Yesterday, 14:43

They are our very own beasts from the deep. But it seems that the famous North Sea crabs have met their match - in the shape of the Beast from the East.

Yesterday, 11:30

A woman who has brought life-changing experiences to dozens of young people has been awarded the Fakenham Mayor’s Community Award.

Most Read

Mon, 17:40

A student from Norfolk had more than seven strokes after a night out and has now taken to YouTube to share her emotional story.

Read more
Twitter
Yesterday, 18:00

The results of a survey distributed across a Norfolk seaside town show that residents oppose plans to redevelop a lifeboat memorial site, however the district council says they will continue to explore the idea.

Read more
Wells Town Council
Yesterday, 11:30

A woman who has brought life-changing experiences to dozens of young people has been awarded the Fakenham Mayor’s Community Award.

Read more
Thursday, May 3, 2018

Parents at Cawston Primary Academy have been sent a message warning them that a man in a van has been approaching children and offering them a ride.

Read more
Reepham High School
06:00

The mother of an RAF soldier who died in a motorcycle is taking on an unusual fundraising activity to raise money for the air cadets, an organisation she says helped to shape her son’s career.

Read more
Netherlands

Local Weather

Partly Cloudy

Partly Cloudy

max temp: 12°C

min temp: 13°C

Show Job Lists

Digital Edition

Image
Read the Fakenham and Wells Times e-edition today
E-edition

Newsletter Sign Up

Sign up to receive our regular email newsletter