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Views sought over treatment of multiple sclerosis in Norfolk

PUBLISHED: 18:27 11 September 2017 | UPDATED: 18:27 11 September 2017

Kelly John, who set up the charity Mustard Soup, to help people with MS. Photo: Kelly John

Kelly John, who set up the charity Mustard Soup, to help people with MS. Photo: Kelly John

Archant

Worries over treatment for Norfolk sufferers of multiple sclerosis (MS) have prompted a charity to launch an investigative survey.

Kelly John from Norwich set up charity Mustard Soup in 2008.

The name represents the “mental fog” those with cognitive dysfunction suffer and Kelly said she soon recognised there was limited support, education and practical advice, especially for younger sufferers.

After a national survey by the Multiple Sclerosis Society last year found only 56pc of those with the illness received disease-modifying treatments, Kelly found anecdotally figures may be even lower in Norfolk.

Now, she has started a simple survey for those with the illness - and she is encouraging as many people to take part as possible.

Kelly said: “Getting a clear idea of the extent of the problem locally would be a great help to neurologists. The problems in treatment arise from the complexity of the disease, in that it attacks several different functions of the body.

“So there is no one drug or type of treatment which will effectively counter its effects. This survey isn’t around a complaint about the NHS or those health professionals who work on treating MS. But everybody is still on something of a learning curve, with new ideas and treatments emerging all the time.

“Also of course, the NHS is under huge and increasing pressure on money and resources. But if we’re to understand the nature and extent of the problem locally, then we need facts from the Norfolk MS community, particularly young people, which we can discuss with neurologists.”

To take the survey, click here, while guidance and background to the survey can be found here.

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