Search

Young girl with rare genetic disorder has £7000 raised for her by local community

PUBLISHED: 13:50 18 July 2018 | UPDATED: 13:50 18 July 2018

Elsie Lane was born with Kagami Ogata Syndrome and needs a specialist pushchair to live at home. Picture: Supplied by Rebecca Gooderson.

Elsie Lane was born with Kagami Ogata Syndrome and needs a specialist pushchair to live at home. Picture: Supplied by Rebecca Gooderson.

Archant

A young girl with a rare genetic disorder that affects just 30 children worldwide has had £7000 raised for her to allow her to live safely at home.

Fundraising events and donations helped to buy Elsie the car seat she needed to travel safely. Picture: Supplied by Rebecca Gooderson.Fundraising events and donations helped to buy Elsie the car seat she needed to travel safely. Picture: Supplied by Rebecca Gooderson.

Elsie Lane from Fakenham had to spend the first 9 months of her life in hospital after she was diagnosed with Kagami Ogata Syndrome which severely affects the respiratory system and needed specialist equipment not available on the NHS to live at home.

Several charities and local businesses from across the area donated to the cause in a great show of community spirit, with fundraisers being organised by Katy Walford, Ian Woodley and Katey Ellis, the Fakenham Conservative Club and Sacred Heart High School.

A hope for Elsie ladies night was also supported by 30 local businesses.

Elsie’s mother, Rebecca Gooderson, was delighted with the generosity she and her daughter have been shown and said: “Without the funds raised it wouldn’t have been possible to not only attend all of Elsie’s vital hospital appointments and get out of the house generally but to also have been given the opportunity to experience things for the first time with her that we were unsure we’d ever get given her poor prognosis.

“We hear such bad things about humanity but this demonstrates to us how people are prepared to help others in times of trouble. I would never have been able to afford the equipment needed and we are so thankful for the generosity we’ve been shown”.

Donations were also given to the cause from the Sunshine Ladies and the Reach for a Star charity, as well as from Ann Clarke and from various people online through the GoFundMe page Elsie’s mother has set up.

The money was used to purchase a specialist car seat from America, a pushchair and a medical monitor.

Elsie was given little chance of survival when she was born 13 weeks prematurely but will be celebrating her 2nd birthday in August.

Doctors nicknamed her ‘miracle baby’ and her mother has organised a party for those who have helped secure the essential equipment to allow Elsie to live at home.

Other news

Yesterday, 17:23

Two of the most iconic cars from 1980s TV and film are set to face off in Norfolk.

Yesterday, 11:46

A soldier from Fakenham who died during the First World War has been honoured in a special ceremony in France.

Wed, 17:09

The leader of a Norfolk council has spoken about a lack of mental health services in the area and said he “can’t imagine” what families who have lost sons to suicide are feeling.

Wed, 15:50

The A47 has reopened between Easton and Honingham after being closed for around seven hours due to a lorry carrying 600 turkeys overturning.

Most Read

Yesterday, 11:46

A soldier from Fakenham who died during the First World War has been honoured in a special ceremony in France.

Read more
Fakenham
Yesterday, 17:23

Two of the most iconic cars from 1980s TV and film are set to face off in Norfolk.

Read more
United Kingdom
Tue, 09:09

A mother has described the terrifying moment a brick was thrown at her windscreen while she was in a car with her five-month-old baby.

Read more
Norfolk Police
Wed, 15:50

The A47 has reopened between Easton and Honingham after being closed for around seven hours due to a lorry carrying 600 turkeys overturning.

Read more
England Ambulance Service
Wed, 09:55

One of Norfolk’s best-known retailers insists it is optimistic about the future, despite being squeezed by rising costs.

Read more
North Norfolk District Council

Local Weather

Overcast

Overcast

max temp: 10°C

min temp: 6°C

Show Job Lists

Digital Edition

Image
Read the Fakenham and Wells Times e-edition today
E-edition

Newsletter Sign Up

Fakenham and Wells Times weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy