Norfolk mum on why people shouldn’t judge when she’s out with her terminally ill four-year-old son

PUBLISHED: 18:00 31 January 2018

Young Kaiden Griffin.

Young Kaiden Griffin.


Norfolk mother Kyra Welch writes about her experiences with her terminally ill four-year-old son Kaiden Griffin. Kaiden, who grew up in North Creake, near Fakenham, and now lives in Holt, has a Congenital Heart Defect.

Kyra Welch playing with her son Kaiden Griffin. Picture: Submitted by Kyra Welch.Kyra Welch playing with her son Kaiden Griffin. Picture: Submitted by Kyra Welch.

Dear judgemental people,

My son has an invisible illness. Please don’t stare or comment when you see me pushing my soon to be 5 year old round in his pushchair. Yes he should be walking or running around but he can’t. He can’t even walk 100 meters without struggling to breath.

Please don’t stare or comment when it’s boiling hot and my sons still in a jumper, or when it’s rather cold and he’s in a light long sleeved top. He can’t regulate his temperature so it’s therefore up to me to make sure he’s the right temperature, he can over heat or be next to freezing, the weather doesn’t mean a thing for him.

Please don’t stare or comment when another child coughs and then comes near my child but I move him away, I’m not judging your child or thinking they aren’t good enough for my son to play with, I’m moving him away because the slightest of coughs, colds, infections can mean endless hospital stays and trips for us.

Please don’t stare or comment when we are eating out and it’s time for him to have his medicines, no I’m not drugging my child by putting a syringe in his mouth I’m helping prolong his life, his medication is vital with his condition. I don’t do it for the fun of it.

Please don’t stare or comment when I buy him yet another toy, he is spoilt but if you didn’t know how long you had left with your child wouldn’t you do the same? You wouldn’t know because you don’t have to think about that.

So please stop judging me on the cover of my story that you see. Unless you have read the book I’m living and know everything about me and what I’m going through please stop judging me on what you see.

Other news

Drivers are being forced to pay a “stealth tax”, it has been claimed, after it was revealed car owners in Norwich paid £74 on average last year to park their cars.

Yesterday, 15:13

The number of fixed-penalty notices (FPNs) issued to cyclists in Norfolk has fallen dramatically over the past two years, new figures have revealed.

Yesterday, 14:00

Danielle Steel falls in love with Norfolk town (without even visiting it) and makes it the star of her latest novel

Yesterday, 08:52

More trains than ever are being delayed or cancelled on East Anglia’s rail network as repeated pledges to improve services fall flat.

Most Read

Thu, 15:21

Christmas shoppers in one Norfolk town have a slick new place to leave their vehicles after an £80,000 car park refurbishment.

Read more
Fri, 09:12

The men and women behind the miraculous marshland rescue of a stranded, half-submerged pensioner have told their remarkable tale.

Read more
European Union
Yesterday, 08:45

It was the first four-engine bomber to be used by the Royal Air Force, blazing a trail that would be followed by many other aircraft designs throughout the Second World War.

Read more
Royal Air Force
Fri, 16:32

A search and rescue training exercise involving a fallen injured horse and rider was simulated in Norfolk to prepare emergency crews in the event of a potential incident.

Read more
Norfolk Fire and Rescue Service
Wed, 16:01

It was once described by experts as the county’s most potentially dangerous fire hazard.

Read more
Environment Agency

Local Weather

Sunshine and Showers

Sunshine and Showers

max temp: 9°C

min temp: 1°C

Hot Jobs

Show Job Lists

Digital Edition

Read the Fakenham and Wells Times e-edition today

Newsletter Sign Up

Fakenham and Wells Times weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy